UK NSC and NHS England seminar on evaluating the impacts of newborn screening for SCID
The UK NSC's most recent online seminar presented research on the impacts of newborn screening for severe combined immunodeficiency (SCID).
The UK NSC's most recent online seminar presented research on the impacts of newborn screening for severe combined immunodeficiency (SCID).
The next UK NSC seminar will look at research into how newborn screening for SCID impacts on both parents and clinical services.
The in-service evaluation of newborn screening for spinal muscular atrophy in NHS services in England is set to start from October 2026, the latest SMA ISE Partnership Board meeting was told.
The UK NSC has published an update on a project called EquipoISE to make it easier to develop the evidence needed to make robust recommendations on screening newborns for rare diseases.
Update from latest partnership board meeting overseeing planning of the in-service evaluation of newborn screening for spinal muscular atrophy.
Paper explores the challenges, opportunities and practical approaches when developing mathematical models to support policy decisions in newborn blood spot screening.
The SMA screening ISE partnership board was updated on a range of activities at its most recent meeting.
The UK NSC has published a suite of documents relating to the review of evidence on newborn screening for spinal muscular atrophy.
The UK National Screening Committee has opened a consultation on a recommendation to continue the in-service evaluation of newborn screening for SCID in NHS services.
The National Institute for Health and Care Research has advertised the research call for the in-service evaluation of newborn screening for spinal muscular atrophy.
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