https://nationalscreening.blog.gov.uk/2026/05/19/sign-up-for-uk-nsc-nhs-england-seminar-on-an-evaluation-of-the-impacts-of-newborn-screening-for-scid/

Sign up for UK NSC/NHS England seminar on an evaluation of the impacts of newborn screening for SCID

Posted by: , Posted on: - Categories: Newborn Blood Spot Screening

The UK National Screening Committee holds online seminars on important themes related to screening tests and programmes.

We are hosting our next seminar in conjunction with NHS England, looking at research into how newborn screening for severe combined immunodeficiency (SCID) impacts on both parents and clinical services.

The seminar will be held via MS Teams on Tuesday 16 June 2026, 11am to 12pm (BST).

To register to attend, please complete this short form.

Registration closes at 11.59pm on 15 June 2026 (BST).

The presentation will be followed by a panel Q&A session.

Impacts of screening for SCID

The seminar will present findings from a mixed-methods evaluation of the NHS newborn blood spot screening in-service evaluation, looking at:

  • the impact of a positive screening result
  • challenges around providing information to families and supporting informed consent to screening
  • wider implications of SCID screening for families and clinical services

The seminar will be hosted by Professor Anne Mackie, UK NSC Director of Programmes.

The presenter will be Dr Jane Chudleigh, Senior Lecturer at King’s College London.

UK NSC seminars

Anyone with a role or interest in screening is welcome to register for this event. Feel free to share the details with colleagues.

Please note our seminars are not recorded, but we share the presentation slides via the blog and our UK NSC seminars webpage.

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