Screening workstreams prominent in England Rare Diseases Action Plan
The UK National Screening Committee's (UK NSC's) work to improve the newborn screening evidence base features prominently in the England Rare Diseases Action Plan 2024.
Silvia Lombardo
Silvia is a Senior Evidence Review Manager with the UK National Screening Committee Evidence Team. Prior to this role, she worked at Public Health England, for national health think tanks and in the private forensics sector. She has a background in pharmaceutical chemistry, toxicology and public policy. She lives in South-East London with her husband and her Maine Coon cat. She’s an avid book reader and TV series and film enthusiast.
Patient and public voice reps needed for blood spot task group project
The UK NSC's blood spot task group is looking for 2 patient and public voice representatives to support one of its core projects.
UK NSC authors explore newborn blood spot screening best practice across Europe
New manuscript explores how newborn blood spot screening policy development and screening practice in the UK compares with patient-led EURORDIS principles.
Meeting the challenges of rare diseases in NHS newborn blood spot screening
Find out more about Blood Spot Task Group (BSTG) and how it is helping inform UK National Screening Committee (UK NSC) evaluations into screening for rare diseases.
How do existing screening programmes get modified?
Find out how the UK National Screening Committee (UK NSC) reviews suggestions for modifications to NHS screening programmes.
Making sure the UK NSC keeps recommendations up to date
The UK National Screening Committee evidence team is trialling a new approach to make the process of reviewing evidence for screening more efficient.